Went to the hospital today....

Discussion in 'General Chat' started by Bristol Pete, Mar 23, 2006.

  1. Bristol Pete

    Bristol Pete
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    Went in and saw the stomach specialist today.

    Went OK but still no resolution to the problem.

    Evidently I have a very bad gall bladder and surrounding tissue which is definately coming out. However he seems to think that there are other things going on in there due to the pain and blood loss. Anyway, got to see 'another' specialist now as having a camera despatched down the hatch to investigate further - plus a possible biopsy (sp?)

    He advised me not to worry about cancer but he has to look :rolleyes:

    Other than that fine :rotfl:

    How are things with you?

    Pete.:smashin:
     
  2. signs

    signs
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    bloodyhell, good luck with your next visit mate
     
  3. hottstuff

    hottstuff
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    ive had this recently also mate
    and again the cancer check was mentioned.
    not a nice experience , with anticipation etc.

    i got the all clear , in fact they could not find anything.
    bad diet for me i suppose and stress:D

    best of luck and stay optimistic pete
     
  4. SeanT

    SeanT
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    Amazingly it could still be nothing but the above. But all the best and my regards anyway :) They ARE miracle workers these days and you will be ok in the end (you just may have to learn to whistle whilst you are waiting and not mention job cuts!!)
     
  5. Bristol Pete

    Bristol Pete
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    After the last two years I have become a specialist in that subject :) I dont think its too serious but you never can tell can you.

    Down to 4 stone 7 now, my slimmest ever and into a size 28 inch jeans which I have not done since I was about 17 back in 1988 :D :rotfl:

    Thanks.
     
  6. GBDG1

    GBDG1
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    4 stone 7? was that a typo?

    Edit... ohh now 4 stone to seven stone...
     
  7. Miniholic

    Miniholic
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    Sounds very similar to my experience Pete, I had myself worried sick that I had stomach cancer and worse, but the longest wait was to actually see the consultant, once I'd had my first appointment, everything went along quite quickly after that.

    That must be some diet.:D
     
  8. shodan

    shodan
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    Oh Pete your life is never boring eh! They need to make a movie about your life, it'll be a massive hit! Dunno who would play you (as Freddie Mercury has died... I'm thinking of that old photo of you on here somewhere...).
    Good luck with the hospital stuff and hope you get better soon. But seven stone is a bit on the light side mate, may I recommend the police diet to you.
    Burgers, kebabs, chips, kebabs, mars bars, kebabs and Dr Pepper. And on your day off.. Beer.

    That'll have you going from thin to fat in not time! Just like me.....
     
  9. Bristol Pete

    Bristol Pete
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    Quality post mate. Yep, my life is never short of eventful. Been a laugh along the way though (i think) and can see the wood for the trees now. I think the lowest point (aside from my OD) was last Sept as my brothers child commited suicide, something I did not post about at the time as was pretty awful for all concerned. He was only 18.

    The above mentioned brother and I are training hard for Bristol half marathon which is in Sept. Be nice to give something back, so probably run for Breast cancer research as Mum had four breast cancer related operations and is doing well. Have not run a half for nearly four years so kinda getting the fitness back now. Which is nice as its bringing back my boyish good looks and attracting the ladies!

    Pete.
     
  10. SeanT

    SeanT
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    I'm not convinced from the coppers that I have met that beer is restricted purely to the day off - I obviously don't mean drink driving, but they consume their fair share in the evenings!!
     
  11. shahedz

    shahedz
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    hey pete, try not to worry too much about it, i strongly belive that we have some of the best doctors in the world in the UK! have they recommended you a special diet? which doesnt cause any discomfort?

    good luck with training for both you and your bro!
     
  12. shodan

    shodan
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    Ah well you see they work different shifts so an evening may just be a "day off"...

    Pete, good luck with the half marathon (I get knackered just eating a Marathon). I'm sure if you were after sponsorship and you had a PayPal account then you could rustle up a few quid from members of the forums here... ;)

    But as for getting your boyish good looks back... Well when I talka bout that with the missus she says you can never get back what oyu didn't have in the first place... :mad:

    :rotfl: :rotfl: :rotfl:
     
  13. Bristol Pete

    Bristol Pete
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    I still recall Tom comparing you to footballer Craig Moore who scrubs up alright mate.

    Just tell her that!!!

    Or just service her with that robot hand :rotfl: :hiya: I mean massage by the way :devil:
     
  14. shodan

    shodan
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    Hahahaha!!!:rotfl: Or Dermat O'Leary? Think I might prefer that (but with Craig Moore's bank balance!):thumbsup:
     
  15. mason

    mason
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    Well Pete.... I am sure that you will be ok but I can appreciate that it will be a worry.

    Best of luck mate and just remember there are loads of us here to talk too.

    G
     
  16. stevegreen

    stevegreen
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    Good to hear Pete............any pics? :laugh:
     
  17. Miniholic

    Miniholic
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    I've got one of my gallstones in a jar if you want me to post some pics? Wonder if they'd count as Raw?:D

    Shahedz mentioned about special diets, I was advised to stick to low fat foods while waiting for my op (fats cause irritation to the inflamed gall bladder), but I've been able to eat normally since. Perhaps too normally as I lost a load of weight when I was ill, put it it back on and more afterwards.:oops:
     
  18. MartinImber

    MartinImber
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    SOmeone should make a film of your life - but we want a happy ending

    Good luck
     
  19. Figment

    Figment
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    Hi Pete. Sorry only just found this thread and I am sorry to hear of your problems. As a lot of the other guys have posted you are not alone in your suffering, I know from personal experience what you are going through and I apologise for the length of the letter I have pasted below but it was the easiest way to explain my own plight. It is a letter I sent last year to the chief executive of my local hospital as a complaint that I was unable to get a simple appointment at the pain clinic. It did the trick after a few weeks I was seen and offered morphine patches that would have meant me possibly not being able to drive, hence work, so I declined for the time being at least and am still managing within reason on the maximum dose of 8 cocodamol a day plus the odd few pethadine with morphine pills as a back-up. My story may not be much of a cheer up but serves to say that in all but the direst of consequences it is still possible to have a reasonable quality of life.
    Regards Mick.
    6/4/2005

    Dear Professor Sheen
    I regret to have to resort to writing to you directly but I seem to be running out of options.
    Starting in 1998 I had many tests and investigations for abdominal pain. This included an ultrasound scan at the RBH for suspected gall stones in 2000 which I was told was normal by the radiographer and subsequently by my GP when he received the results. I also had to be admitted to the RBH A&E department on several occasions during these attacks. A few months later
    I collapsed in excruciating pain while on a weekend break in Wales. I was rushed by ambulance to the Prince Philip Hospital Llanelli and within 24 hours was diagnosed as having in excess of 200 gall stones and a badly diseased gall bladder as if this was not bad enough they said I also had a duodenal ulcer. Despite my insistence to my GP at the time who told me the problem was posture related or even psychological and various visits to RBH outpatients gastroenterology consultant who’s name escapes me this condition had gone undiagnosed for in excess of 2 years.
    I have to say that the treatment I received in Llanelli was excellent but due to a couple of urgent cancer cases they were unable to offer me an operation to remove the gall bladder but did say that it needed to be done as soon as possible and should I have any problems seeking surgery to let their consultant Mr Holt know of this. They referred me back to the RBH and your Consultant Mr Dehn.
    It took a month with much pressure from my GP to even get a consultation appointment with Mr Dehn who told me in no uncertain terms that he had much more pressing cases and I would be placed on the non-urgent list despite what Mr Holt had said. I found this wholly unacceptable as I was in great pain and unable to work.
    I wrote to Mr Holt who very kindly invited me back to the Prince Philip Hospital to carry out the surgery within a matter of a few weeks unlike the minimum 6 months Mr Dehn was stating.
    Once I had been through the surgery and a recovery period all seemed well for a few months only for the pain to return. It was at this point I was then referred to the RBH once more and for the first time
    was seen by Dr J Booth who unlike any of the previous RBH doctors I had seen did at least inspire a modicum of confidence in me. After a few visits to Dr Booth and an endoscopy ( one of 6 I think it is I have had now ) I was then sent for an MRI scan and he performed an ERCP which apparently due to
    a sudden movement on my part although I was not conscious at the time caused an episode of acute pancreatitis which hospitalised me for a week.
    Following this Dr Booth decided to refer me to Dr Westaby a specialist in the bile system at the Chelsea and Westminster Hospital. They arranged for further MRI and ERCP tests and eventually decided that
    I had a restriction of the sphincter of oddi. I was then admitted for this to be operated on, a procedure that had to be aborted due to complications that had to be repeated more successfully at a later date.
    At last after 5-6 years of pain I seemed to be pain free but this was short lived when I became aware of a different pain of an even greater magnitude in a similar area. Back at the Chelsea and Westminster late last year I was told that it was highly likely that due to the prolonged length of my previous condition that it had almost certainly caused permanent damage to my pancreas resulting in chronic pancreatitis.
    This condition was confirmed by Dr Westaby in January of this year who stated that alongside medication I would need for the rest of my life to control the symptoms of this condition I would also need a good deal of pain management for what is an extremely painful and debilitating illness. The current pain control I have is totally inadequate and I spend more than 50% of my life in great pain affecting not only my work but also my home life. Dr Westaby referred me back to your Dr Booth for follow-up consultation and it has taken from January until my impending appointment on the 18th of April just to get a consultation with him. As if this were not bad enough Dr Westaby also said that to be able to get a reasonable lever of pain control that I would need to be seen urgently at my local hospital pain clinic. Being cynical of the words RBH and urgent being used in the same sentence I did inform him that the last time I was referred to the RBH pain clinic during my previous illness, I was informed by them that there was an extremely long waiting list which was born out by the fact that my pain at that time was if not cured, made bearable by surgery and that even though I did to my recollection ever cancel the request for an appointment with them, never heard from them again. Dr Westaby’s reply was that is not going to happen this time you need pain control and you need it soon and that he would say as much in his letter to Dr Booth requesting this. As you may guess and as I expected I heard nothing for several weeks, then in February I contacted Dr Booths secretary who informed me that the request had not even yet been made to the pain clinic, but in Dr Booth’s absence that she would ensure the request was made stating the urgency. I did receive a copy of the letter she sent to them and to my mind there did not appear to be much urgency shown in the request which prompted me to contact her again and request that on his return that Dr Booth should contact them again in an effort to expedite this which she agreed to do, and I assume did. After leaving it for a week or so to give the pain clinic time to receive
    the request and hopefully respond I then contacted them in hope of getting an appointment to which I was informed that the request had only been dealt with as routine and I could not expect to receive an appointment for three and a half months which is their waiting time. I was obviously extremely unhappy with this and asked them to do all they could to help me sooner, this was met with the reply that it would not be any sooner than the time already stated but that I would be seen within that time frame.
    Despite my GP also having written requesting that I be seen sooner due to the effect that the pain was having on my quality of life, it was not until this week that I finally received a letter telling me that the pain clinic was now ready to take my booking. A very long awaited letter, that I received with a sigh of relief.
    You can then, imagine my anger, disbelief and disgust when calling to make the appointment that I was told that the first available was not until the 5th of July !! .
    a wait of a further four months in addition to the three I have already waited. It really beggars belief that this department are telling patients that are suffering acute pain that they face a await of over three months, a figure that is also published, only to find that this is just the time it takes to get a letter asking them to make the appointment only to be told they face another 4 month wait before even getting an initial consultation. I sincerely doubt that a waiting time of that magnitude is going to be published or in fact used when returning waiting list times to a Government that has pledged to reduce them and spent billions of pounds in an effort to do so. I also have grave doubts that this wait complies with the patients charter regarding waiting times. I make no apology for my tone of this letter as I am sure you will have by now gathered that I am truly at my wits end that after being let down so badly throughout the last 7 years by not all but the majority of those providing treatment at the RBH, that has not only failed to provide a decent level of service but also due to downright incompetence caused me to now face the rest of my life with a debilitating and potentially life threatening disease. I hope against hope that this letter will not only prove to make it possible for me to receive help sooner than the appointment that I have had to make for the 5th of July, but also in some small way bring it to your attention just what sort of service the people of Reading are getting.
     
  20. Bristol Pete

    Bristol Pete
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    Cripes. Sorry to hear about your stomach problems too. Nightmare isnt it.?

    Bit like sitting on a keg waiting for it to go.

    When I collapsed last week, I have never ever known pain like it, hence the collapse I suppose. When I saw the specialist on Thursday he asked me to describe the pain and I simply said it was to hard to transpose it into words.

    Pete.
     
  21. Figment

    Figment
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    Well Pete the medics told me that having a gall stone attack is more painful than having a baby !! something I cant vouch for :eek: But it is also very similar to an ulcer of which I had both at once. If there is any blood involved an ulcer would also explain that so don't automatically look on the bleak side.
    Easier said than done I know full well but sharing experiences really helps to ally fears. The husband of our best friends collapsed with the same symptoms a few of weeks ago and it took the hospital a week to diagnose what the problem was that I had already told him within an hour of hearing his symptoms. Not saying I am clever I just don't get it why the medical profession seem to not be able to recognise such a common problem time and time again.
     

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