Long Covid - Anybody Aware?

Tim2049

Well-known Member
I caught Covid back in November. Taste and smell were affected for a few weeks then slowly returned to normal. Beginning of last week, my sense of taste became heavily impaired. 'Most' savoury food tastes and smells revolting.

Pretty weird virus, that's for sure...
 

jmacc

Distinguished Member
Had my first telephone assessment with the long covid clinic, they were rather surprised that my Dr had not shared the blood tests results which showed a potassium deficinecy and a severe vitamin D deficiency, they think that there is a good chance this is a long term thing now as most recover fairly quickly if they are going too.

I've been referred for some cognition sessions that are not due to start until April, so even though they are aware iof the issues with lnog covid the planning is still very far behiond.
Wishing you all the best mate, you've had a right rough time of it.
:love:
 

DrapedInDarkness

Distinguished Member
Had a good day yesterday and apparently it was cheeky to want a 2nd, an awful nighht followed up in the morning eith a fresh bout of conjunctivitus, love covid the gift that keeps on givingg.

Thanks @jmacc @Trollslayer nice of you both :thumbsup:
 

DrapedInDarkness

Distinguished Member
Written by a sufferer shortly before they died.


Horrible to read and even sadder to know what hapens next.

The terrifying thing is I could write pretty much the same thing and almost daily, I have periods where things feel better and then it all collapses again.

I had a few good days last week and now I'm paying for it again, I had to go out twice today, once to the binstore and once again to the binstore when my meat deliverd just the day before turned out to be off, th first trip to the binstore saw my heart rate climb to 92 which is actually pretty good at the moment but my breathnig was quite hard and my legs felt very heavy and my head was absoltely splitting.

When I went back down again it was the afternoon and myheart rate had settled back to a usual 63-65ish so I felt relatively comfrotable and went back down with the meat, this time before even getting to the binstore I felt much worse and had to slow right down to prevent a collapse of the physical kind, getting back to my gflat and my heart rate had shot up to 123 and I was utterly breathless.

Usually when I stop doing whatever hs sent my heart into overdrive my heartrate calms down realtively quickly, but it took over four hours before my heart rate was in the lower 80's and my legs were like lead with shooting pains in my left ankle as if I had just broken it all over again.

I messaged my dr about the long covid clinic not getting back to me yet and about talking therapies not having a long covid clinic like the adviser thouht it did and got a very terse and to the point message misquoting me and basically not giving a damn.

Hard days and hard nights do not a happy dind make
 

DrapedInDarkness

Distinguished Member
Written by a sufferer shortly before they died.


I wanted to know a little bit more about Mr Rooksby so browsed twitter and other social media sites, the day he died one kind soul criticised him and called him a massive bed wetter with a psychosomatic condition because he never dialled 999.

Hard getting people to believe you at the best of times, even dying seems hard to believe for some.
 

goingoingong

Distinguished Member
Researchers have warned that Covid-19 can cause long-term muscle and joint issues, including arthritis, gangrene and 'Covid toes'.

An analysis of MRI scans taken of patients experiencing these symptoms suggests that the virus can trigger the body's immune system to attack itself, leading to these long-lasting rheumatological issues.

Covid-19 can lead to GANGRENE, study warns
 

goingoingong

Distinguished Member
While the Daily Mail article I linked to above is a 'bit' sensationalist it still serves as ammunition against uncaring GP practices. After Covid last march I had two months of gout like pain in my big toes (leaving me unable to do more than hobble a very short distance) and 4-5 episodes of week long pain in my smaller toe joints. Along with this I've also had stiffness and pain in my fingers and wrists. My GP response can be summarised as

tenor.gif
 

DrapedInDarkness

Distinguished Member
I had an outo f the blue call from the BBC today and was asked some questions, told I would be notified if they used any of it and then I saw this.... Long Covid: 'I can't walk 10m without a rest' I'm not upset not to be notified, good to see more perspectives on the BBC
 

DrapedInDarkness

Distinguished Member
I've had long Covid for 11 months. I'm now about to be referred to a long Covid clinic

Sorry to hear, coukd I ask what symptoms you are goin through at the moment.
 

fabulouspoodles

Novice Member
I had Covid in mid March. Still have only just got my taste back❤️, but not my smell.Like most people who have anosmia, you also go through the parosmia stage( which many say is the worst) .

Anosmia( or Covid in general for all I know) is described as coming and going in 'waves' or snakes and ladders- ie two steps forward three steps back. Suffers also can't smell burning, can't smell gas leaks.In the parosmia stage, everything may taste of chemicals . Warm air may triggers that smell as does cold air.Some report water tasting foul, and also getting the phantom smells which can be burning, ( like burnt toast for me) , burning rubber, or foul rotting rubbish, ashtray smell, smell, chemicals( mine was like strong fuel / garlic), etc and food tastes of this too.
Now , Fatigue, depression, anxiety also. It's known anosmia or covid(?) can cause that.Also had nausea after Christmas for a few weeks .

Initially , I stayed at home and didn't have a Covid test( as that was the advice at the time) , but a few weeks in I paid for a private antibody test which was positive.

I thought it might come in useful to have some " proof" that I'd had it, in case I ever needed treatment, and I'd urge anyone who ' thinks' they might have had it to do the same( obviously there's certain timescale).I've met a number of people I've chatted to who didn't think they had Covid, but kept smelling weird smells that no one else could- that is parosmia and it's not very well known , but is an after symptom .

Initially the cough, not really getting off the sofa in the day for five days with fluey type symptoms, chronic fatigue, brain fog( problems with word finding ).
I initially read that I should try to get myself referred to an ent specialist( even though I knew there was probably nothing they could do) , my doctor told me to wait 6 months. I did so and spoke To doc again . two days ago receptionists told me the ent clinic say I should be referred to the long Covid clinic. I had to complete a questionnaire ( which was quite poor and much of it referred to people who'd been hospitalised ) but also had a scoring system .
I read that once referred , the waiting time was 4.5 days for an appointment , but I don't know how long the doctors will take to refer me on.

I don't work so have been able to rest through it

Has anyone else been referred to a long Covid clinic?
I've got a link to the questionnaire if anyone wants it.
My surgery told me I was the first person they'd referred .
How do you " thank "posts ?
 
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fabulouspoodles

Novice Member
I don't even know what the thumbs are😔, and I've looked at another thread on how to , and I still don't get it. Do you have to have a certain number of posts to " thank"?
Hmm..is this a wind up..😱 ..novice poster.....😂..google is my friend..
 
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Trollslayer

Distinguished Member
Look for ellipsis (the three dots together), the one to the right of the picture icon is most useful.
You can thank away!
 
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DrapedInDarkness

Distinguished Member
I had Covid in mid March. Still have only just got my taste back❤️, but not my smell.Like most people who have anosmia, you also go through the parosmia stage( which many say is the worst) .

Anosmia( or Covid in general for all I know) is described as coming and going in 'waves' or snakes and ladders- ie two steps forward three steps back. Suffers also can't smell burning, can't smell gas leaks.In the parosmia stage, everything may taste of chemicals . Warm air may triggers that smell as does cold air.Some report water tasting foul, and also getting the phantom smells which can be burning, ( like burnt toast for me) , burning rubber, or foul rotting rubbish, ashtray smell, smell, chemicals( mine was like strong fuel / garlic), etc and food tastes of this too.
Now , Fatigue, depression, anxiety also. It's known anosmia or covid(?) can cause that.Also had nausea after Christmas for a few weeks .

Initially , I stayed at home and didn't have a Covid test( as that was the advice at the time) , but a few weeks in I paid for a private antibody test which was positive.

I thought it might come in useful to have some " proof" that I'd had it, in case I ever needed treatment, and I'd urge anyone who ' thinks' they might have had it to do the same( obviously there's certain timescale).I've met a number of people I've chatted to who didn't think they had Covid, but kept smelling weird smells that no one else could- that is parosmia and it's not very well known , but is an after symptom .

Initially the cough, not really getting off the sofa in the day for five days with fluey type symptoms, chronic fatigue, brain fog( problems with word finding ).
I initially read that I should try to get myself referred to an ent specialist( even though I knew there was probably nothing they could do) , my doctor told me to wait 6 months. I did so and spoke To doc again . two days ago receptionists told me the ent clinic say I should be referred to the long Covid clinic. I had to complete a questionnaire ( which was quite poor and much of it referred to people who'd been hospitalised ) but also had a scoring system .
I read that once referred , the waiting time was 4.5 days for an appointment , but I don't know how long the doctors will take to refer me on.

I don't work so have been able to rest through it

Has anyone else been referred to a long Covid clinic?
I've got a link to the questionnaire if anyone wants it.
My surgery told me I was the first person they'd referred .
How do you " thank "posts ?

Hang in there, I'm constantly assured things will get better, I'm still waiting but I may now be becoming a very cynical person with regards to the whole thingg.

I never lost my sense of smell completely, but things smelled different or comepletely wrong, opne of the worst is a acrid electrical type smell which always panicked me and made me think the flat was burning down, now I pretty much ignore when it happens (which may be worse) or the disgusting stench of sewage which is much harder to ignore.

I was referred to the long covid clinic on December 14th and my first actual anything from the clinic was a lung capacity test on the 21st January, since then I have had a telephone assessment in February and nothing since, although I have been tolkd the physio team will be in contact to assess my physical being at some point.
 

SteveAWOL

Distinguished Member
I'm interested if you should have the vaccine if you've got long Covid .

FWIW...

What if I've already had Covid?
People will still be offered the jab even if they have had Covid-19 in the past.
Guidance says there are no safety concerns about giving jabs to people with "long" Covid either. But people who are currently unwell with Covid-19 should not receive the vaccine until they have recovered.
 

raduv1

Distinguished Member
I'm afraid a work colleague may have long covid . He tested positive over the Christmas period , isolated and came back to work . He was ( still is ) coughing like crazy and short of breath . He passed out at work a couple of weeks back , simply keeled over . Spoke to my manager about him, the reply was as soon as he has got it out of his lungs he will be OK. My understanding that this can be, is permanent damage to lungs ?
 

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