Long Covid - Anybody Aware?

FrankBT

Member
Had to finally admit I now need help with walking, not everyday but some days now I can barely move while on others I limp like my leg has been badly broken, so now I am the proud owner of a walking stick and a walker.

When does it start to get better?

In your situation I'd be looking at physiotherapy, something I've been undergoing recently.

I had my 1st Covid jab nearly a year ago, and 3 weeks later I woke up with intense pain and stiffness in my left shoulder, and could only move my left arm around in small movements. Eg, I could not raise my arm to shoulder height. It was murder just trying to put on a shirt or coat.This lasted for many weeks, and I had to take paracetamol until July when I came off it, as the pain started to lessen, but still felt fairly uncomfortable. In October I finally started physiotherapy on the NHS. It took months to get that first appointment, but weeks later I now have full range movement back in my left arm and shoulder, and the pain now is only slight, a big improvement from 6 months ago.

The other treatment I'd seriously consider is acupuncture, which isn't on the NHS (AFAIK), but has been used successfully to treat patients with ME, amongst loads of other serious physical complaints.
 

DrapedInDarkness

Distinguished Member
Went to do myself some soup yesterday and had a few problems holding the plate.

The plastic thing behind my arm is the new microwave tray I have got off Amazon to never have it happen again.
:(
 

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Everything Goes

Distinguished Member
Reasons for breathless in Long COVID patients doesn't always show up in traditional CT scans, or X Rays. New research using Hyperpolarised Xenon Magnetic Resonance Imaging in has however been able to detect these issues. More research is however needed, but looks promising.


 

IronGiant

Moderator
This was shown on the News shortly after you posted, very interesting :thumbsup:
 

acatweasel

Distinguished Member
So refusing the vaccine to catch Covid and play the natural immunity game instead, is still a fool's errand.


Not the biggest surprise I’ve seen today. I wonder if anyone would like to try the “superior natural immunity game” with polio, AIDS, smallpox, etc., etc., etc.
 

richp007

Distinguished Member
Not the biggest surprise I’ve seen today. I wonder if anyone would like to try the “superior natural immunity game” with polio, AIDS, smallpox, etc., etc., etc.

I think most of those members have been moved on mate :)

yeah I'm sure similar has been posted on here before, but I figured it was worth a share. Although to those opposed to vaccination they'd still likely just say they're too hard to get Long Covid.
 

maxkolonko123

Well-known Member
everyopne talking about long covid, post covid health issue, but why nobody talks here about post vaccine health issues? 4 months post my 2nd jab of Pfizer got diagnosed with myperiocarditis, 34y old never any issues with heart neither in my familly, never been tested positive for covid either, yet ended up last week in hospital with 500 troponin levels and none of doctors mentioning it could be related to vaccine
 

Miss Mandy

Moderator
everyopne talking about long covid, post covid health issue, but why nobody talks here about post vaccine health issues? 4 months post my 2nd jab of Pfizer got diagnosed with myperiocarditis, 34y old never any issues with heart neither in my familly, never been tested positive for covid either, yet ended up last week in hospital with 500 troponin levels and none of doctors mentioning it could be related to vaccine

Pericarditis and myocarditis are known possible side effects from the vaccines, aren’t they? The chances of them are extremely low as far as I’m aware and both often do clear up although this can take some months.
It could be related to the vaccine or it could be related to other issues. I’d be surprised if it’s related to the vaccine if it’s taken four months to show itself, but its possible I suppose.

You’re the first person I’ve come across that actually believes they have heart issues caused by the vaccine which is probably why it hasn’t been discussed much on here.
 

maxkolonko123

Well-known Member
Pericarditis and myocarditis are known possible side effects from the vaccines, aren’t they? The chances of them are extremely low as far as I’m aware and both often do clear up although this can take some months.
It could be related to the vaccine or it could be related to other issues. I’d be surprised if it’s related to the vaccine if it’s taken four months to show itself, but its possible I suppose.

You’re the first person I’ve come across that actually believes they have heart issues caused by the vaccine which is probably why it hasn’t been discussed much on here.
Have a look here

Read through comments, I think people dont share it here cause they are kot aware of this issue, everyone either will say this was due to covid or some other condition same in hospitals, nobody will think or say out loud vaccine can cause or its really rare.
 

Inked

Distinguished Member
Have a look here

Read through comments, I think people dont share it here cause they are kot aware of this issue, everyone either will say this was due to covid or some other condition same in hospitals, nobody will think or say out loud vaccine can cause or its really rare.

Of course it could have been from the vaccine, as @Miss Mandy stated above it is a known side effect, albeit a very rare one (something like 2 in a million).

While I feel sorry for you that it may well have caused the issues you’re having I’d still rather take the chance on the vaccine.

Take a look at the stats for dying in a car accident across your lifetime and it works out to be something around 1 in 240 so far more likely yet I bet you’d still get in a car.
 

Saul Goodman

Distinguished Member
Pericarditis and myocarditis are known possible side effects from the vaccines, aren’t they? The chances of them are extremely low as far as I’m aware and both often do clear up although this can take some months.
It could be related to the vaccine or it could be related to other issues. I’d be surprised if it’s related to the vaccine if it’s taken four months to show itself, but its possible I suppose.

You’re the first person I’ve come across that actually believes they have heart issues caused by the vaccine which is probably why it hasn’t been discussed much on here.
Doesn't @Nightrain have something similar?

Sorry to hear @maxkolonko123 hope you get well soon buddy!
 

Nightrain

Well-known Member
Doesn't @Nightrain have something similar?

Sorry to hear @maxkolonko123 hope you get well soon buddy!
I experienced heart palpitations shortly after my Pfizer booster which did concern me enough to go to A&E. Ultimately they did not diagnose either of the conditions but did note my heart rate was noticeably higher. Ultimately it eventually returned back to normal after several weeks.

I do have long term rheumatological issues as a result of AstraZeneca however.
 

richp007

Distinguished Member
everyopne talking about long covid, post covid health issue, but why nobody talks here about post vaccine health issues? 4 months post my 2nd jab of Pfizer got diagnosed with myperiocarditis, 34y old never any issues with heart neither in my familly, never been tested positive for covid either, yet ended up last week in hospital with 500 troponin levels and none of doctors mentioning it could be related to vaccine

That's because instances of Long Covid far outweigh instances like what has happened to yourself.

Sorry this has happened of course, but how many doctors have you seen? Perhaps they don't believe it is related to the vaccine, which is why they've not mentioned it.
 

maxkolonko123

Well-known Member
That's because instances of Long Covid far outweigh instances like what has happened to yourself.

Sorry this has happened of course, but how many doctors have you seen? Perhaps they don't believe it is related to the vaccine, which is why they've not mentioned it.
I spent over a week in hospital, it is not they don't believe it's just like they ignore such possibility, not giving any specific reason at all, like I said I never been tested positive with covid neither had any heart issues before in my life. At first they thought I had a heart attack (35y old) cause of troponin level being at 488 after further diagnosis and angiogram they put myoperiocarditis as a diagnosis but they didn't pin point it what caused it rather guessing, so to he honest I don't know what caused it but after reading and studying about it I'm pretty much convinced it was due to vaccine, probably I'm the unlucky one.
 
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maxkolonko123

Well-known Member
Of course it could have been from the vaccine, as @Miss Mandy stated above it is a known side effect, albeit a very rare one (something like 2 in a million).

While I feel sorry for you that it may well have caused the issues you’re having I’d still rather take the chance on the vaccine.

Take a look at the stats for dying in a car accident across your lifetime and it works out to be something around 1 in 240 so far more likely yet I bet you’d still get in a car.
I did took the chances and got vaccine albeit we didn't had much of a choice, annoying thing is I don't know how the vaccine will affect us in long term, neither I don't know how myopericarditis will affect my health in long term either
 

DrapedInDarkness

Distinguished Member
Nothing from em for a while as there has been nothing happening, only update is that after moving me from one text based app to another they have finally agreed the cognitive side of things renders such apps useless and I will finally be put forward for some form of physiotherapy soon..........
 

Trollslayer

Distinguished Member
I hope so.
 

joner7777

Well-known Member
It should come back. Practice sniffing on some essential oils every day for five minutes, if you have them. Or Vicks vaporub. Your smell memory needs stimulation.
Covid Tests can be hit and miss.
I'm still smelless! I can taste better!
Got the vicks/obas/lemon beside me but to no use.
If I walk outside in fresh air it is a overpowering smell of strong perfume.
Any loo functions smell like burnt rubber.
It's been since July now like this , at 65 I guess I will never smell properly again.
Never tested positive, only happened after the jabs.
 

DrapedInDarkness

Distinguished Member
I had a moment of absolute horror on Sunday followed by the dawn of recognition and acknowledgement that things with my memory are worse than I realised.

I was watching Prime at the weekend and decided to rewatch the Arsenal - Manchester United game from December, my memory let me down badly by allowing me to believe we had won this game and apart from Smith Rowes goal which constantly gets referenced I actually did not remember a thing about the game.

Speaking to Talking Therapies on Monday we got into it and he asked me things from our first meeting and I had to admit that I did not remember what we had talked about, we then went on to my love of film and TV shows and I saw my review for Game Of Thrones - The Complete series and was equally horrified to find apart from seasons 1-4 which I watched before the pandemic I can remember just bits and pieces, and I'm not sure how many of those are accurate.

Looking through my feedback I realised that apart from a few months I can barely recall what I have sold here and although I bought a horror documentary from ml337 and I know for a fact that I watched it I can no longer recall a single detail.

My recall from being a kid up until 2020 is almost perfect, I can remember song lyrics from when I was 7-8 to films and dialogue almost verbatim from my teens to my forties but now I'm absolutely terrified that I have some form of dementia and it is only going to get worse.

I'm constantly forgetting about the oven and hobs and about locking my door and so much more little things that seem trivial but are all leading me to become so concerned and nobody is bloody talking to me about it, the long covid clinic have finally admitted that they are looking for people to take the burden onto themselves as there is no cure and currently no treatment, I've left messages for my Dr but have had no reply.

Even if things eventually get better physically, how do you restore memories that are already lost and how do you stop losing them at all?
 

Lightfooty

Distinguished Member
I'm still smelless! I can taste better!
Got the vicks/obas/lemon beside me but to no use.
If I walk outside in fresh air it is a overpowering smell of strong perfume.
Any loo functions smell like burnt rubber.
It's been since July now like this , at 65 I guess I will never smell properly again.
Never tested positive, only happened after the jabs.
The virus seems to have had different effects on different people.
Throughout 2020 I was getting allergic reactions every month and was referred to a specialist. But it died down in 2021 and has stopped now altogether. Very random but likely related to what was going on.
The doc said it would go as randomly as it started, hopefully that’s what will happen to your sense of smell.
 

meagabyte

Well-known Member
Long covid sucks.
Caught it beginning of 2021 before the vaccine became a thing (for my age group anyway) over and done with in about 2 weeks. But a year later and my sense of taste and smell stil hasn’t fully returned. I still have tight chest problems. I’m putting the lack of energy down to not leaving the house ina year though. The brain fog is a pain. I can concentrate and work through problems (IT engineer) but can’t seem to keep simple stuff in my head. Like the mrs will ask me to bring something downstairs and within 5 mins I’ve totally blanked it.
 

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